Prader-Willi-Syndrome

Prader-Willi-Syndrome is a rare disorder for people to have. It is a disorder that can’t be cured, and there are fewer than 20,000 cases per year. PWS is a syndrome where a person’s brain tells them they are constantly hungry and need food. Prader- Willi- Syndrome usually leads to obesity and type 2 diabetes. PWS causes delayed development, learning disability, delayed puberty, failure to thrive, short stature, or speech delay. It also affects their whole body by excessive hunger or reduced hormone production. Some also common side effects are infertility, baby feeding difficulties, excess sleepiness, lazy eye, scoliosis, sleep apnea, or small feet. 

Emory, my little sister, has Prader- Willi- Syndrome. She is 5 years old and is from China. She’s really 7 years old but is so short we had to change her age to 5 to let her in for school.  We have to make her stop eating because she will eat and eat. Her throat is not formed properly so that means if she tries to throw up, she will choke on it and could suffocate and die. She can only say a few words but the syndrome is preventing her from being able to talk normally. She will have panic attacks and will sweat and shake. She is learning a lot but is still having trouble meeting her limits with eating.